Faith Bigger Than Fear: Trusting Jesus Through My Son’s Tuberous Sclerosis Diagnosis
Being a mother has stretched my heart in ways I never could have imagined. It has also deepened my faith in ways that I don’t think anything else could have.
My son has Tuberous Sclerosis. Because of this, he faces challenges that many people may never see on the surface. He is nonverbal, has developmental delays, has brain tumors, autism, and experiences seizures. Our life often revolves around appointments, specialists, therapies, medications, and constant adjustments. Some seasons feel like a revolving door of doctor visits and new information to process. There are moments when it can feel overwhelming.
As his mother, I want so badly to take every struggle away from him. I wish I could make everything easier. But the truth is that I can’t control everything that happens in his life, and I’ve had to come to terms with that.
What I can do is trust God.
There have been so many moments where I’ve had to surrender my worries, my fears, and the “what ifs” that try to creep into my mind. When I start thinking too far ahead or wondering how certain things will work out, I remind myself that God already knows. He knew my son before he was ever born. He knew every detail of his life, every challenge, and every victory.
And somehow that gives me peace.
That doesn’t mean the road is always easy. There are still hard days. There are still moments of exhaustion and uncertainty. But even in the middle of those moments, I’m reminded that God has never left me. Not once. Through every diagnosis, every appointment, every late-night worry, and every unexpected turn, He has been there. He continues to give me the strength I need to show up for my son each day.
My son has taught me so much about patience, resilience, and unconditional love. But he has also taught me something deeper about faith. Faith isn’t just trusting God when things make sense. Faith is trusting Him even when they don’t. I don’t know what every chapter of my son’s story will look like. But I do know that God is writing it. And that brings me so much comfort.
Being his mother is one of the greatest blessings in my life. Even on the hardest days, I’m reminded that God entrusted him to me for a reason. And with His help, I will continue to love him, advocate for him, and walk alongside him every step of the way.
“For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.” – Jeremiah 29:11
